This study examined the psychosocial impact on parents of children affected by Dravet Syndrome (DS), a rare drug-resistant developmental encephalopathic epileptic syndrome which affects children at an early age and that involves severe cognitive, behavioral, and motor impairments. DS has a major negative impact on caregivers, mainly on their physical and mental health, and on their social ...

Interactive rendering technologies like maps, timelines, and plots can be powerful tools for data visualization and exploration. In the context of media, such tools are often referred to as lean-forward, implying that the user is actively telling his own story by using control primitives such as skip, pan, tilt, adjust, scroll, rewind, reorder, zoom, play and more. We are interested in using such ...

Estuaries provide nurseries for early life stages of fish that rely on the interaction between fresh- and saltwater. The 250 km long Lake Melville spans 2100 km2 and is the largest estuary of Labrador (northeastern Canada). This sub-arctic fjard hosts freshwater, anadromous, and marine fishes on which depend marine mammals and seabirds, but also coastal communities. Yet, how different fish species ...

Arctic cod (Boreogadus saida) is the most abundant forage fish species in Arctic seas and plays a pivotal role in the transfer of energy between zooplankton and top predators. The dominance of Arctic cod and the Arctic’s relatively low biodiversity interact such that changing population dynamics of Arctic cod have cascading effects on whole Arctic marine ecosystems. Over the last decades, warming ...

Current eforts to halt the decline of biodiversity are based primarily on protecting species richness. This narrow focus overlooks key components of biological diversity, particularly the infra-species genetic diversity, which is critical to consider with respect to genetic adaptation in changing environments. While comparative population genetics is recognized as a relevant approach to improve ...

The effectiveness of International Safety Management (ISM) Code has been evaluated in many aspects. However, limited research has been attempted to evaluate the auditing mechanism, its quality, and links with the effectiveness of the Code. The aim of this Paper is to define the concepts of quality in auditing and thereafter propose a model for measuring audit quality in maritime safety management. ...

Below we consider the evolutes of plane real-algebraic curves and discuss some of their complex and real-algebraic properties. In particular, for a given degree d ≥ 2, we provide lower bounds for the following four numerical invariants: 1) the maximal number of times a real line can intersect the evolute of a real-algebraic curve of degree d; 2) the maximal number of real cusps which can occur on ...

During several surveys covering the north-western and northern Svalbard waters, and the deeper Yermak Plateau north of Svalbard during the period 2012–2020, 291 standardized hauls with a demersal trawl were made. All fishes in the catches were identified to the lowest possible taxonomic level, mostly to species. In addition to the data generated from the trawl catches, bottom temperature, salinity, ...

High-latitude aquatic ecosystems are responding to rapid climate warming. A longer ice-free season with higher water temperatures may accelerate somatic growth in lake ectotherms, leading to widespread ecological implications. In fish, rising temperatures are expected to boost rates of food intake and conversion, and predictions based on empirical relationships between temperature and growth suggest ...

Background: Wellness is a holistic, multidimensional, and process-oriented property on a continuum. It has been used interchangeably with and is undifferentiated from concepts such as health and well-being without an in-depth clarification of its theoretical foundations and a reflection on its meaning. The concept of wellness is frequently used, but its definition remains unclear.<p> <p>Aim: To ...