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dc.contributor.authorAurén-Møkleby, Eva Margareta
dc.contributor.authorThoresen, Lisbeth
dc.contributor.authorMengshoel, Anne Marit
dc.contributor.authorSolbrække, Kari Nyheim
dc.contributor.authorAasbø, Gunvor
dc.date.accessioned2023-08-09T09:24:13Z
dc.date.available2023-08-09T09:24:13Z
dc.date.issued2023-08-02
dc.description.abstractBackground: Most cancer patients state a preference for home death. Care and support from primary caregivers are important to enable dying at home. A preference for home death from the perspective of couples has rarely been investigated.<p> <p>Objectives: To explore how a preference for home death is understood and enacted in couples where one of the partners is dying of cancer.<p> <p>Design: A qualitative interview research design with a narrative approach was used.<p> <p>Methods: Five couples participated in dyad interviews. During the analysis, two interviews that particularly illuminated couples’ shared and individual views were chosen as the primary cases.<p> <p>Results: The interviews show, in two highly different ways, how a preference for home death is a significant relational matter. The interviews are presented as two cases: ‘Struggles in an Unknown Terrain’ and ‘Reliance at the Kitchen Table’. They show how a preference for home death can be understood and enacted as a struggle or as reliance based on the couple’s shared biography and the partner’s ability to care for the partner during the end-of-life phase. The analysis highlighted the negotiations that underpin a preference for home death. In these negotiations, the couples drew on idealised understandings of home death. These ideas were supported by cultural values related to autonomy and independence as well as participation and citizenship. Thus, in the negotiations about being cared for and caring, legitimate dependency and the maintenance of a reciprocal relationship were balanced. The presence of healthcare professionals and medical devices in the home had to be balanced with the need to maintain a sense of self and an authentic home.<p> <p>Conclusion: A relational perspective on a preference for home death made us attentive to couples’ negotiations. These negotiations give couples the opportunity to re-evaluate and reconfirm individual and mutual needs in the end-of-life phase.en_US
dc.identifier.citationAurén-Møkleby, Thoresen, Mengshoel, Solbrække, Aasbø. It’s not just about me: a qualitative study of couples’ narratives about home death when one of the partners is dying of cancer. Palliative Care & Social Practice. 2023
dc.identifier.cristinIDFRIDAID 2165539
dc.identifier.doi10.1177/26323524231189517
dc.identifier.issn2632-3524
dc.identifier.urihttps://hdl.handle.net/10037/29809
dc.language.isoengen_US
dc.publisherSAGE Publicationsen_US
dc.relation.journalPalliative Care & Social Practice
dc.rights.holderCopyright 2023 The Author(s)en_US
dc.rights.urihttps://creativecommons.org/licenses/by/4.0en_US
dc.rightsAttribution 4.0 International (CC BY 4.0)en_US
dc.titleIt’s not just about me: a qualitative study of couples’ narratives about home death when one of the partners is dying of canceren_US
dc.type.versionpublishedVersionen_US
dc.typeJournal articleen_US
dc.typeTidsskriftartikkelen_US
dc.typePeer revieweden_US


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Attribution 4.0 International (CC BY 4.0)
Med mindre det står noe annet, er denne innførselens lisens beskrevet som Attribution 4.0 International (CC BY 4.0)