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dc.contributor.authorArbabi, Mohammad Salar
dc.contributor.authorDa Conceiçao, Arlindo Flavio
dc.contributor.authorGarrett, Thiago
dc.contributor.authorNygård, Jan Franz
dc.contributor.authorVitenberg, Roman
dc.date.accessioned2024-02-12T09:34:47Z
dc.date.available2024-02-12T09:34:47Z
dc.date.issued2023-09-06
dc.description.abstractMedical research often requires access to sensitive personal health data. According to GDPR, such access is only possible under certain legal bases, such as consent. Verifiable and secure management of health data access is thus essential for promoting public trust in organizations that manage sensitive health data, for ensuring legal compliance, as well as for motivating patients to participate in research projects and allow access to their health data. In this work, we advocate a blockchain-based approach for verifiable management of sensitive health data access for medical research. We present the life cycle of a medical research project w.r.t. health data access, by identifying the involved entities and their interactions. Important requirements for verifiable management of health data access are also identified. We believe that the advocated approach will contribute to satisfying the identified requirements in the context of the defined life cycle.en_US
dc.identifier.citationArbabi MS, Da Conceiçao AF, Garrett T, Nygård JF, Vitenberg R: Tracking Decisions about Granting Access to Health Data: Application Analysis and Requirements. In: - I. 2023 IEEE International Conference on Decentralized Applications and Infrastructures (DAPPS), 2023. IEEE (Institute of Electrical and Electronics Engineers) p. 1-6en_US
dc.identifier.cristinIDFRIDAID 2219006
dc.identifier.doi10.1109/DAPPS57946.2023.00010
dc.identifier.isbn979-8-3503-3535-4
dc.identifier.urihttps://hdl.handle.net/10037/32905
dc.language.isoengen_US
dc.publisherIEEEen_US
dc.relation.projectIDNorges forskningsråd: 288106en_US
dc.relation.urihttps://ieeexplore.ieee.org/stamp/stamp.jsp?tp=&arnumber=10237014
dc.rights.accessRightsopenAccessen_US
dc.rights.holderCopyright 2023 The Author(s)en_US
dc.titleTracking Decisions about Granting Access to Health Data: Application Analysis and Requirementsen_US
dc.type.versionacceptedVersionen_US
dc.typeChapteren_US
dc.typeBokkapittelen_US


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